Alcohol and me

Alcohol and me
Alcohol and me

Motivation for this post

Once again the motivation for this post comes from a Pinterest pin.  It is a beautiful blue pin of a margarita, but alcohol and me have always had an uneasy relationship.

Social drinking

I have to admit that I’ve never liked the taste of alcohol.  The result has been that that I’ve had very little alcohol when I have had some.  I did not drink at all until I got to law school.  Of course, this means I was over the legal drinking age when I did drink.  It was not unusual for me to go to a bar and socialize but only drink a Coca Cola.  While this was fine with me, it made other people uncomfortable so eventually I relented and had a beer.  I rarely had a whole beer.  I would sip a small amount of the beer, and when the cold beer become warm, I would order a new beer and discard the warm beer.

Bad auto accident

One day I was in a disco and heard that a female aquaitance had a bad auto accident after leaving the disco.  She had a fair amount of alcohol.  This made me question the wisdom of even using alcohol in social situations.

Stopped by a policewoman

Sometime later I was driving after going to a disco and I was pulled over by a female police officer.  While there was nothing wrong with my driving, I suspect the police were just routinely pulling over cars leaving the disco.  I had only had 1/4 of a beer at the disco, which I admired to the officer.  It was clear that I was not drunk, and no sobriety test was administered.  She let me go on my way home.


Don’t drink and drive

Even though I was not inebriated, this incident also made me think twice about alcohol.  Drinking and driving is a fool’s game.  It is a major mistake.  Besides, I don’t even like the taste of alcohol.  It is not worth the risk.  I began drinking more Coca Colas when I went to a bar.  Needless to say Coca Colas are very expensive at a bar, but you will never get drunk from Coca Colas.

Do not mix meds and alcohol

Now I’m much older and I take a variety of blood pressure medicine, cholesterol medicine and multiple sclerosis medicine (among others).   Mixing alcohol with medicines can be very dangerous.

The end of alcohol

Frankly, I see no reason to have alcoholic beverages any longer.  Besides, I never liked the taste of alcohol, anyway.


In conclusion, do not drink and drive because it will clearly impede your handling of a motor vehicle.  Do not mix alcohol and drugs, even if the drugs are prescription drugs.  Many prescription drugs counter indicate the use of the drugs with alcohol.  You are better off having a soft drink or plain water.  Yes, the Pinterest pin still looks good, but the real thing is not worth the risk.

Eating in Bed Can Be a Chore


Pinterest inspiration

Once again a Pinterest pin has inspired a post.  This is getting to be routine.  It does motivate me to post more.

Contact with others

At this point in the development of multiple sclerosis, I am essentially a paraplegic.  This means I spend much of my life in bed.  It is not a bad life and I have some friends and family to keep me going.  Of course, I have this blog too.  Some people just don’t need that much contact with others.  Some people crave it almost constantly.  I fall into the former category.  I enjoy contact with others, but I do not crave it constantly.  Sometimes just being alone allows me to think clearly, sort my ideas and be at peace.

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Energizer bunny

Anyway, if I were than much of a loner I not be a blogger.  My mind is still very active and it tells me that I am the Energizer bunny, even though my body suffers from MS fatigue. This brings me back to eating in bed.

Eating 01
Eating 01

Eating large pieces

I have most of my meals in bed.  I rarely use a knife.  It is not easy to cut food while in bed. At home,I have a hospital bed.  This allows me to raise my upper body so that I can eat.  It is not a perfect solution but is much better than a flat bed for eating.  When I do need to cut food I usually use the side of a fork, or I pick up the food with a spoon or fork and just take a bite out of the food.  This allows me to eat large pieces of chicken and other foods without an aide.  It is not the dantiest way to eat and doesn’t always look too good, but it gets the job done.  It sometimes looks like I’m eating like a barbarian, but it works for me when I’m hungry.

Eating 02
Eating 02


I presently have a cold, which is getting better, and I have some soup.  I usually pick up the bowl and just slurp as much of the soup as I can.  This may not look good but I am able to have soup. Otherwise, if I try to have the soup with a spoon, it is not long before I find myself laying in soup.  The soup is all over me and it is a mess to clean.

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Rice is another food I like, but I need a spoon to eat rice.  I usually eat it with a tablespoon. This spills less rice and allows me to eat more rice quickly.


Another food I like is peas.  However, peas on a flat plate is a catastrophe.  The peas roll off the plate when I try to eat them. Peas are better served in a bowl with a tablespoon. I often use tablespoons because this allows me to eat more faster.  It is also easier to get the food on the spoon.


Eating in bed involves learning a whole new style of eating.  It also means other people need to get accustomed to seeing me eat differently.  This is often harder for the caregiver than it is for me.



It’s in the pin

Usually you would expect that a post would precede a Pinterest pin.  In this case, I was working on a really cool Pinterest pin and it inspired a blog post. I was working on a honey Diabetic alternatives Pinterest pin and it inspired this post.

A1c and diet soda

Previously my doctor advised me that my A1c (an indicator of my sugar intake) was moving up, and I decided to do something about it. I was drinking regular soda.  I drink soda because it has caffeine and the caffeine helps me fight the multiple sclerosis fatigue that I have.  I switched to diet soda.  It has 0 calories and no sugar.  The aspartame and other artificial sweeteners make me a little dizzy, but it is tolerable.   I decided that it was worth a little dizziness in exchange for a better A1c.

Kidney stones

I drink what is considered “clear” sodas.  The reason is that towards the end of 2003 I had a kidney stone operation.  A review of certain studies has led me to believe that “dark” sodas (mostly colas) are bad for kidney stones. They seem to promote the formation of kidney stones.  I am not a physician but it looks like I should stay with “clear” sodas.  My sodas of choice are Mountain Dew and Sunkist.  This is because both have caffeine and neither are colas.


Cutting the A1c

I have begun to look into food alternatives, but I have to admit with less success.  Anyway, switching to diet sodas significantly cut my A1c.  It was cut down to 6.0.  The last blood test showed it creeping up to 6.3.  I am still trying to get it lower. This has resulted in me taking a substantial interest in Diabetic Diets.  One of which I promote on my products and services page.

Reduce sugar

One way to deal with this is to cut down my sugar intake.  Just put little or no sugar in my tea and coffee.  Another is to use artificial sweeteners such as Equal or Spenda.  I have been trying to use less sugar in the food I eat.  Using less ketchup is also effective.

Chinese food

I like Chinese food, but staying away from sweet and sour chicken, and deciding on foods without sauce is helpful for me.  I put a little mustard on the Chinese food.  It does not have to be Chinese mustard, which I often find too hot.  It can be regular hotdog mustard, which I like much better.

Tasting real food

I have been eating many foods plain, without sauce. This means I actually taste the real flavor of the food I am eating.  I have found that I am actually rediscovering the flavor of foods. Plain chicken is really good.  Plain fish such as fillet, Boston scrod and tilapia are great tasting even without tartar sauce.  Tasting real food can be an experience in itself.


In conclusion, I was getting concerned about my sugar intake, and I have tried to do something about it. You can do the same if you need to reduce your sugar intake.  It just takes a little motivation and a lot of guts to try foods plain that you didn’t think you liked.

Getting the Grip

Cold pills
Cold pills

MS medicine and the Grip

I don’t know how much better or worse my really bad cold would be with or without my Multiple Sclerosis medicine – Gilenya. It has helped me in many ways. (A subject for another post.). It does affect the immune system, but I doubt that it affects colds one way or the other.  An allergist once tried to explain the different ways Gilenya works on the immune system, and I wish I understood it better.  I think scientists are still trying to figure out how it does what it does.  The FDA looks to whether the drug is safe and effective with less emphasis on how it got there.

Coughing and more

Anyway, the grip (a bad cold) is no fun.  It has caused a coughing spree which has made it very difficult to do much of anything.  I’m writing this post to help people through this and because I suppose that misery loves company.  The cold does get better after a few days, but does not go away.  It seems to just linger on for awhile.  It spreads its misery throughout my system as it travels from my chest to my head to my nose to my ears.



This weakens me, and simple things become much more difficult. Simple things like eating and taking my medicine, become a chore.

Other health issues

It would be bad enough if I just had the grip, but I am recovering from the baclofen pump operation, and oral surgery.  Frankly, I usually have great motivation and I still do, otherwise I would probably not be writing this post.  This is just one more annoying thing to deal with in life.

I will survive

I am determined to make it though all of this, as well as MS fatigue (which will be a topic for another post), and so can you.

So will you

If you are unlucky enough to also have the grip, we can make it though this together.  I’ve been taking a little Tylenol to make it through the rough spots.

Be determined, and we will survive this cold.

Medicine Change (It’s like an oil change)


I recently had surgery changing the pump – when they change the battery, they change the pump, too.  I have the standard (40 ml) Medtronic Sychromed II pump installed in me.  It’s a little like being the bionic man.

An oil change for the pump

Typically, the pump is refilled with new medicine every three or for months.  It’s more like an oil change.  The bad (old) medicine is taken out and good (new) medicine is put in the pump.

I have a service that comes to my home and will change the medicine while I am in bed.

Surgeon’s office says new medicine

The service called me on Saturday to tell me that they would come on Monday for the pump refill.  I said that I was told at the surgeon’s office that when the surgeon changed the battery and pump, they put in new medicine.  Accordingly, on Monday someone would come, but only to check out the pump.  This is called interrogating the pump.  Thereafter, I realized that Monday would not be good for me.  I spent all weekend trying to get in touch with them to change th day to Tuesday, to no avail.

The nurse and the medicine plan to arrive

Monday came and the nurse who would change the medicine called to tell me new medication would arrive at the house and so would he.  Still trying to change the day, I explained that the surgeon’s office had told me that new medicine was put into the pump when the surgery was performed and the medicine had not arrived at the house.  He assured me that the medicine would arrive shortly and so would he.

The nurse calls the surgeon’s office and is told of the new medicine

Apparently, the medicine and he arrived in the afternoon, negating my reason to change the day to Tuesday.  When he arrived, I again told him that I was told at the surgeon’s office when I had the staples removed, that new medicine was put in the pump at the time of the surgery.  He decided to call the surgeon’s office.  He was told that new medicine was put in the pump at the time of the surgery.  He came back to the pump, interrogated the pump, and he noticed that I had a fair amount of medicine in the pump.

The nurse calls the surgeon’s office a second time and is told they are uncertain about the medicine

He again called the surgeon’s office, but this time they were uncertain whether new medicine was put in the pump at the time of the surgery.  He said that they usually put in new medicine, but might not have because I was getting such a low dose that the medicine was diluted, and they may not have had diluted Medicine  available at the time of surgery.

The nurse decides to change the medicine

In view of this uncertainty, he decided to change the medicine in the pump.  Usually, this does not hurt.  The pump has no port.  A needle is inserted into the middle of the pump.  The area of insertion is found by feeling for the depression in the pump, and with the help of a template that shows the area of insertion.  This time the needle hurt.   This was so probably, because the whole area was sensitive as a result of the recent surgery.  Anyway, he took the possibly old medicine out and put in new medicine.  I was relived when the procedure was concluded.


Usually, no bandage was used, but this time a small bandage was used.  I removed the bandage two days later.

Trip to the Oral Surgeon

Trip to the Oral Surgeon
Trip to the Oral Surgeon

The appointment

I made an appointment with the oral surgeon.  I confirmed that they take my insurance, which they do.  I made sure that the driver would be available.  The night before the day of the appointment, the driver calls to say that he cannot make it.  He has no explanation.  This one of life’s problems when you are a paraplegic with multiple sclerosis.  You rely on other people and sometimes they come through for you, and sometimes they don’t.  Fortunately, I was able to get another driver.

The day of the appointment

The driver finally shows up but he is late.  There is traffic on the expressway, and we arrive late.  I give the receptionist, the x-rays which are on my smartphone, and I email the x-rays to the receptionist.  Apparently, I don’t fit in the oral surgeon’s x-ray machine in my power wheelchair.

Seeing the Oral Surgeon

I waited an hour and finally the oral surgeon sees me.  I explain that I am there for one extraction.  He explained that someday the other two would need to be extracted because they really cannot be saved.  I was considering anaethesia, but since this was not my regular driver, and he no idea how the van door and ramp work, and no idea how to get home, I decided to have an injection.   The oral surgeon gave me two injections.  He said that the tooth was being held together by a cap that was over the tooth.  The tooth came out in pieces.  He said this was a difficult extraction, because the bone underneath was strong but the tooth was cracked in pieces.  It was being held together by the cap and in place by the strong bone.  I left the office with instructions to bite down for at least 20 minutes.

Leaving the Oral Surgeon

Of course, I had to ask the driver for the key, so that the door would open and the ramp come out, which it did flawlessly.  This is particularly difficult to say when you must bite down for 20 minutes.  Then I directed him on the way home.  We stopped off at Autospa which finally had the dip stick in stock.  The big job was getting the old broken dip stick out of the van.  This was finally accomplished, at no cost to me since an Autospa employee broke the dip stick while doing an oil change.

Arriving Home

We left Autospa and went home.  Now I had to continue recovering from the pump (battery) replacement surgery, and the oral surgery.

Trip to the Dentist

Finding a dentist

I did not want to pay $5,000 to the dentist that saw me at home.  I have dental insurance and I knew I could get dental work done for a lot less.  I called my old dentists who I had seen 3 years ago, and to my surprise, they were willing to work on me while I was in the wheelchair.  I made an appointment and on the day of the appointment, I was off to see the dentist.

Getting into the van

I was dressed and I was patient lifted into the wheelchair.  I took the wheelchair to the van.  As sometimes happens the van door which is supposed to open electronically by remote control did not open.   I had my driver manually open and close the door and then the van door electronically opened.  The old used van has a finicky electronic door and ramp, but with a little work, it functions.

Dentist Office

I got to the dentist office and had the usual one hour wait. Then they took me.  I provided them with the x-rays that the dentist that came to my house provided.  Therefore, I did not need new x-rays.  I had a cleaning, and after the cleaning, I heard the dental hygienist complaining to one of the dentists how hard it was to work on a patient in a wheelchair.  The dentist told the hygienist this is part of dentistry.

Seeing the Dentist

The dentist looked at the x-rays and looked in my mouth, and told me that I had three broken teeth that needed to be extracted.  Then he left to see another patient.  An assistant came into the room to say that I’m all done for today.  I said I wanted to see the dentist again.  I waited for the dentist to return.  When he finally returned, he said the teeth would have to be extracted by an oral surgeon.  I asked why he could not do the extraction?  After all, he had performed extractions on me in the past.   He said that although they had done extractions in the past, my bone was strong but the teeth were cracked and these teeth would come out in pieces, so it was best to have an oral surgeon do the extraction.  I advised him that I was not in pain and I wanted to keep as many teeth as possible.  He then said that one really needed to come out and that the other two could be done later.

Check out

I went to the front desk and made another appointment.  Since I have insurance and these dentists are on my plan, there was no co-payment and no charge.  Of course, upkeep of the van and the driver cost, but the dentist is free.

The trip home

This time the van door and ramp worked, and I was on my way home.  We stopped off for some gas and we stopped off at AutoSpa to see whether they received the new dip stick.  They hadn’t and we continued home.

Dentist Comes to my House

Doctor Recommended

I have a general practice doctor that comes to the house.  I have not seen a dentist in three years.  It was really time to see a dentist.  The doctor recommended a dentist who could come to the house.   I called the dentist and he came to the house.

Dental X-rays

The dentist began by taking x-rays of my teeth while I was in bed.  He looked in my mouth and saw that I needed two new crowns.  He said that this would cost $5,000.  I told him that I have dental insurance.  He told me that he does not take that insurance and that he was very sorry for people who had that insurance company.  He apparently did not think highly of that insurance company.

He left my house while reminding me that I would need the new crowns. We talked a little about Star Trek.  We parted amicably.

Van Air Conditioning

Oil Change

I own a handicap van.  It is not a new van.  It is on old used handicap van.  It is a 2006 Chrysler Town & Country.  Of course, it cost much less than a new van.  However, an old used van is going to have many more problems than a new van.  It will cost a lot of money to fix an old used van, but then I knew this when I bought it.

I took it to an AutoSpa for an oil change and air conditioning service.  I finally realized that it needed help with the air conditioning when (a) the air conditioning did not work and (b) I hear this really bad grinding sound from time to time.  It was still summertime, but it was the end of summer.  I don’t use the van as much as I had expected originally.  At first, I drove the van, but now I let another driver handle the driving for me.

It was time for an oil change and Autospa is usually empty, or almost empty, and can do a 10 minute oil change.  There are probably less expensive places for an oil change but most places take much longer to do an oil change, not because the are slow at doing oil changes, but because they are so busy that there is a long line.   Of course, the driver costs money and that is a factor too.

While doing the oil change, an Autospa employee broke the dipstick, and Autospa agreed to provide me with a new dipstick at no cost, which they later did.  I put in regular oil since the van is not used much anyway.

Air Conditioning Service

Then came air conditioning service which did not go well.  I was told that they could not do air conditioning service, because the compressor was broken.  I was directed to take the van to two different places.  The first place was closed.  The second place was way too busy to do the job, but that place directed me to a third place that could do the job.

MS Patients Need Air Conditioning

At the third place, I was told that I needed a new compressor and an air filter, and that it would cost $900.  Frankly, I have MS, and I really did not have much of a choice.  Many people with MS can not tolerate the heat.  We lose function.  We can hardly move in the heat.  It is not a matter of leaving the car window open, because the hot air blowing does not help much.  For someone with MS, air conditioning is not a luxury, it is a medical necessity.

Waiting for Air Conditioning

It took about three hours to get the parts and install the new parts.  They also put in new freon.  I waited for the repair.  Finally, the air conditioning was working and I felt much better in the van.  We went home.

Remove staples

Who will remove the staples?

I am home with 12 staples in me holding the surgical site in place.  I can have a nurse come to my house to remove the staples or I can go to the surgeon’s office to remove the staples.  I decide to have the staples removed by the surgeon so he can see how the surgery went.  I make an appointment with the surgeon only to confirm the appointment, to find that the surgeon has decided to schedule a surgery at the same time as my follow up visit.

If not the doctor, then maybe his nurse

I suppose the surgeon makes more money from surgeries than he does from follow up visits.  I tried to reschedule the appointment for the next week, but the doctor was off that week.  However, his nurse could see me.

The surgeon’s nurse removes the staples

I had the nurse remove the staples.  It was 12 days after the operation.  Generally, the staples were removed 12 to 14 days after my operations.  She said the staples were about to come out themselves.  That is how ready I was to have the staples removed.  Although there were a dozen staples, it was essentially painless to have the staples removed. There were no further follow up visits with the surgeon.